Uncategorized Searching for a cure for boy with rare disease neurofibromatosis By Medaxs - June 8, 2014 0 34 FacebookTwitterPinterestWhatsApp Libby Neville can remember Googling her son Hamish’s condition when he was diagnosed – neurofibromatosis. Sifting through pages of worst-case scenarios, she realised she wouldn’t find solace in search engine results.